Playing the Waiting Game

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As someone who has never “officially” worked before in their life, getting monetary help from the government proves to be very difficult. I fell ill when I had recently turned 14 in 2011. This illness proved to be chronic and condition after condition piled onto my diagnoses chart. I am housebound and have continued to have gotten worse since the day I began to acquire those illnesses. In the government’s eyes, a person who has never worked, did not go to college, and who is not actively trying to get a job is trying to cheat the system. Continue reading

An Inspirational Controversy

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Inspiration. Oxford Dictionaries describes it as, “The quality of being inspired, especially when evident in something… A person or thing that inspires.” We all have something or someone that inspires us. Maybe as a kid you looked up to your dad and wanted to be just like him. He was your source of inspiration. John Quincy Adams even is quoted as saying, “If your actions inspire others to dream more, learn more, do more and become more, you are a leader.” The issue is, what if you do not want to be a leader or an inspiration to others? Continue reading

The Plastic Straw Debate

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Did you know that plastic straws are being banned all across the world? That sounds like an amazing thing for the environment and wildlife. Don’t get me wrong, it is, but in the process, this straw ban is harming millions of disabled people. Most people are able to drink a beverage with or without a straw. It is just a matter of preference. However, for disabled people who have problems in dexterity, holding weight, or need to have their carers help them drink, this poses a huge problem. Straws are an integral way to allow someone to drink any type of beverage, with little difficulty. This ban is literally making drinking impossible for people. Continue reading

Hereditary Lymphedema: A Mystery Years in the Making

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A poster of the Lymphatic system that is in my therapist’s office.

I’ve decided to do a post about my most recent diagnosis, Hereditary Lymphedema. Lymphedema around the world is most commonly caused by the disease, Filariasis a parasitic infection. However, my Lymphedema is not caused by Filariasis, but instead, it is caused by faulty genes. There are two types of Lymphedema: Primary (Hereditary) Lymphedema and Secondary Lymphedema. Continue reading

Amusement Park Rides Banning Disabled People

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My favorite thing to do on a hot sunny day was to go to an amusment park. I’m pretty sure most everyone enjoys these types of parks because of all the variety of fun they bring. The food, live shows, games, and shops are all exciting to go to. However, the best part for me was the rides. Any type of ride I loved, yet I lost a big amount of love for these parks today. While I cannot go to these amusement parks anymore due to my disabilities, many other people with disabilities can go. Yet more and more of these people are being turned away and banned from going on these rides just because they are disabled. Continue reading

Finding Our Beauty Within the Standards

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I’ve just realized that I do not know how the word beauty is officially defined.  Merriam Webster’s describes it as the quality or aggregate of qualities in a person or thing that gives pleasure to the senses or pleasurably exalts the mind or spirit. This is the first result that displays under the word beauty on their page. So beauty obviously is the qualities that “gives pleasure” to someone else. What I find interesting however, is the attention that this description gives to the mental and spiritual aspect of beauty. Continue reading

Throwing Failure to the Curb

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Failure. The mention of the word gives me chills down the spine. Why are we so afraid of failure? The psychological impacts of failure are driven deep down into our memories, where we can remember times that we failed from a very early age. Continue reading

Evie’s Law Continues the Fight for Discrimination-Free Organ Transplants

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Did you know that adults and children alike all over the United States are being denied eligibility for organ transplants? Was it because they couldn’t pay for it, insurance didn’t cover it, or they didn’t meet the requirements? No, these beautiful people are being denied because they have disabilities. They have disabilities such as Down Syndrome and Autism. Doctors have been deciding that these people didn’t have enough quality of life to be worth providing an organ transplant to. Continue reading