July’s Chronic Illness Linkup 2019

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That time of the month is here again! Wow, I feel like I just participated in June’s Chronic Illness Linkup. This year is going by fast! Just to review, Sheryl Chan from ‘A Chronic Voice’ hosts these monthly linkup parties. She comes up with different topics each month to write about and we interpret them however we please. This month’s topics are justifying, starting, analyzing, concluding, and planning. The rules are down below for anyone interested in joining. Let’s get started! Continue reading

Playing the Waiting Game

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As someone who has never “officially” worked before in their life, getting monetary help from the government proves to be very difficult. I fell ill when I had recently turned 14 in 2011. This illness proved to be chronic and condition after condition piled onto my diagnoses chart. I am housebound and have continued to have gotten worse since the day I began to acquire those illnesses. In the government’s eyes, a person who has never worked, did not go to college, and who is not actively trying to get a job is trying to cheat the system. Continue reading

The Plastic Straw Debate

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Did you know that plastic straws are being banned all across the world? That sounds like an amazing thing for the environment and wildlife. Don’t get me wrong, it is, but in the process, this straw ban is harming millions of disabled people. Most people are able to drink a beverage with or without a straw. It is just a matter of preference. However, for disabled people who have problems in dexterity, holding weight, or need to have their carers help them drink, this poses a huge problem. Straws are an integral way to allow someone to drink any type of beverage, with little difficulty. This ban is literally making drinking impossible for people. Continue reading

Evie’s Law Continues the Fight for Discrimination-Free Organ Transplants

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Did you know that adults and children alike all over the United States are being denied eligibility for organ transplants? Was it because they couldn’t pay for it, insurance didn’t cover it, or they didn’t meet the requirements? No, these beautiful people are being denied because they have disabilities. They have disabilities such as Down Syndrome and Autism. Doctors have been deciding that these people didn’t have enough quality of life to be worth providing an organ transplant to. Continue reading

The Power of Advocacy and How To Use It


What is advocacy? Merriam-Webster describes it as the act or process of supporting a cause or proposal. Wikipedia further describes advocacy as Continue reading