Today we are talking about something a little more personal for me. On April 29th, I found out that Jaquie from Chronically Jaquie on YouTube died. For those of you who do not know about her, Jaquie was a true chronic illness warrior. She dealt with Mast Cell Activation Disorder, Narcolepsy, POTS, EDS, Common Variable Immunodeficiency (CVID), Gastroparesis, having multiple feeding tubes, and a Mitochondrial disease, to name a few. Finding out that she died devastates me. Jaquie is the first ever person with chronic illness that I followed. She was the inspiration and hope in my life for a long time. She is the reason that I am involved in the chronic illness, mental health, and disability communities today. Watching her videos made me feel like I knew her. God Bless you Jaquie.
The biggest thing that she inspired me in, was the hope of dreams fulfilled despite circumstances. Many of you do not know that one of my biggest fears is to end up alone. However, seeing her beautiful relationship with her husband Judd, made me so hopeful for my own future. In many ways, she dealt with so much more than I did. I will always look back at her and know that my dreams can be accomplished. It is so hard to see someone who inspired you so much, pass on. I feel like a piece of me has been taken with her. The piece of the past me that was afraid and timid, unsure of how to live my life. Now that I am advocating and writing, I will let Jaquie take that piece. The piece she helped to change.
I know Jaquie is living a pain free life right now. She is getting to meet my big brother and together, they will continue to watch my progress through this life. She may be gone, but she is not forgotten. Jaquie lives on in the hearts of the hundreds of thousands of people she impacted. I know that she had a personal mission here on this earth. She wanted to inspire others and encourage them to speak up in whatever way they could. From all the responses I have seen already, I know she completed that mission. Jaquie touched my life in a way that I will never be able to forget. She was such a special person, a person too good for this earth. I am glad that she is not in any pain, unlike how she lived so much of her life.
When we honor people who have made such an impact in our lives, it feels like a loss of a family member. Even though I never met Jaquie in person or spoke to her over the phone, she was a big part of my life. She will continue on filling a large part of my heart as well. The selfless way in which she lived, is what I want to emulate. To this community that I have created, I want to be here for you like Jaquie was for me. My heart hurts and it will continue to for a long time. I grieve not only for her loss, but also for her family and friends as well. Jaquie, my wish for you is for no more pain. For a life you can live in a healthy body, watching everything you set into motion down below. Rest in peace.
Thank you for reading this special update today. Did you know Jaquie? Please tell me how she impacted you. Subscribe for more and I’ll see you next time my Un-imaginables!
Sources: Original Photo by Sharon McCutcheon on Unsplash